Dear all,

We had a great conference, thanks to all those who planned, chaired, presented and attended. All in all 105 people registered, while others attended in groups. Combined, days 1 and 2 had 6 hours of learning and sharing. We had a total of 25 presenters and 10 chairpersons. 

Use the links below to access the reports for Day 1 and 2.

Day 1 https://epilepsyalliance.africasocialwork.net/eaac5-day-one-of-conference-report/

Day 2 https://epilepsyalliance.africasocialwork.net/day-2-report-epilepsy-alliance-africa-conference-2025/ 

Conference videos: selected presentations will be uploaded to our YouTube channel

Feedback

We kindly ask you to provide us feedback USING THIS SHORT ANONYMOUS FORM: https://forms.gle/GBVir91Y6YhGuYp98

Invitation to EAAC6
We warmly invite you to the 6th Epilepsy Alliance Africa Conference (EAAC6), which will take place on 16–17 September 2026. Building on the successes of EAAC5, the next conference will be larger and will continue to unite voices for epilepsy advocacy, innovation, and impact across Africa and globally.

5th Conference, 17 September (2 hours) and 18 September (4 hours) 2025

17 September will be 2 hours and 18 September will be 4 hours.

Please use the same ZOOM link or ID that was emailed to you after registration to attend on both days.

Join us for the next conference that will be during Stripes Epilepsy Week.

Conference theme

From Voices to Action – Recognising the Works of Grassroots Organisations | Working towards reaching African targets of the Intersectoral global action plan on epilepsy and other neurological disorders.

Aim of the conference

The EAA is a young Africa-wide alliance of epilepsy associations that was formed in December 2019. Each year, the we host a conference to bring together people working to defeat epilepsy in the African continent and interested parties from across the world. This year’s conference will be held during the Zebra Stripes Week which is Africa’s homegrown awareness event. Through the 5th online conference, we hope to bring people together to learn about the work that is being done by advocates and professionals, hear from experts and policymakers and more importantly hear stories of resilience and how people with epilepsy and their families are being impacted.

Program

Program (HTML)

DaySessionPresentersTitle / Topic
Day 1 Opening 8-9am Chair: Dr Rugare Mugumbate, ZimbabweProf. Najib Kissani, MoroccoMr. Banard Mbuya Onyango, KenyaMr. Youssouf Noormamode, MauritiusProf. Alla Guekht, RussiaOpening RemarksIntersectoral Global Action Plan (IGAP) on Epilepsy and other Neurological Disorders
Session 1: Community Voices 9-10am. Chair: Prof Najib Kissani, MoroccoMr. Habimana Jean Leon, RwandaThe Role of Epilepsy Advocacy in Transforming Lives of People with Epilepsy in Rural Communities
Prof. Athanase Millogo, Burkina FasoProfessional’s Role in Africa
Prof. Arif Herekar, PakistanKeynote: Chairman and Head of Neurosciences, Baqai Medical University, Pakistan
Ms. Vallent Adhiambo, KenyaAdvocacy Work of Grassroots Associations: the Case of GENO, Kenya
Day 2Session 2: Regional Interventions 8am-9am Chair: Ms Sarah Nekesa, Uganda and Mr Taurai Kadzviti, ZimbabweDr Osman Miyanji, KAWE, KenyaOpening Remarks
Dr. Bertha Chioma Ekeh, Nigeria/GambiaRole of Community Health Workers in Epilepsy Care
Dr. Daniel Gams Massi, CameroonFactors Associated with the Stigmatisation of People with Epilepsy
Mr. Symon Munde, MalawiThe African Disability Protocol during the Conference
Dr. Michel Arnaud Saphou-Damon, GabonMedication Availability for People with Epilepsy in West Africa and Impact on Seizure Management
Session 3: Regional Interventions 9am-10am Chair: Ms Chantal Kanyabutembo, Rwanda Prof. Chahnez Charfi Triki, TunisiaTraining Epilepsy Trainers Among Primary School Teachers
Prof. G. Q. Kandawasvika, ZimbabwePaediatric Epilepsy Care in Zimbabwe: Overcoming Barriers, Enhancing Access
Ms. Nyaradzai Gomwe, ZimbabweEpilepsy and Cognition: Understanding the Neuropsychological Implications
Prof. Angelina Kakooza, UgandaPrevention of Common Neurological Conditions across the Life Span
Session 4: Global Perspectives 10am-11am Chair: Ms Epillose Musimbi, Kenya and Ms Enat Yewnetu, EthiopiaDr. Mrs. Chanda Kulkarni, IndiaEpilepsy as a Prototype Model to Educate Healthcare Professionals at the “Grass Root Level”
Prof. Maria Emilia Cosenza Andraus, BrazilContinuing Medical Education in Epilepsy and EEG – improving diagnosis in resource-limited settings
Prof. Jo Wilmshurst, South AfricaTransition of Care in LMICs
Prof. Arjune Sen, United KingdomIntroducing The Centre for Global Epilepsy
Session 5: Reflections & Closing 11am-1200am Chair: Mr Bankole M.OlusolaMs. Afnane Massou, MoroccoMs. Betty Barbara Nsachilwa, ZambiaEAA Vice-Presidents* Dr. Najib Kissani, MoroccoReflections & Closing Remarks *(Samuel Chigamba (Southern Africa), Adam Jannah (West Africa), Michel Arnaud Saphou-Damon (Central Africa), Dr Mahdaoui Mohamed (North Africa)

4th Conference, 27 September 2024

Empowering Caregivers: A Journey of Giving, Receiving and Valuing Care

Theme EAAC4

EAAC4 will now be held on Friday 27 September 2024 via Zoom during Stripes Week.

The EAA is a young Africa-wide alliance of epilepsy associations that was formed in December 2019.
Each year, the EAA hosts a conference to bring together people working to defeat epilepsy in the African continent and interested parties from across the world. In 2020, the EAA planned as a high-level dialogue meeting that became its first conference.

This year, the conference will be held during Stripes Week/Africa Epilepsy Week which runs from 23-27 September. Stripes Week is an annual event promoted by the Epilepsy Alliance Africa (EAA). It is celebrated globally during the 3rd week of September each year to accelerate epilepsy awareness. During Stripes Week, we mobilise people for epilepsy awareness throughout the world. What is the easiest thing you could do during the week? Wear or use zebra colours. Anything with stripes or zebra colours. A hat, scarf, headcover, shirt, dress, blouse, trousers, bag, belt, t-shirt and tie or cushion or hair.

Through this conference, we hope to bring people together to learn about the work that is being done by advocates and professionals, hear from experts and policymakers and more importantly hear stories of resilience and how people with epilepsy and their families are being impacted.

Who can present, talk or share experience: academics, clinicians, professionals, social workers, organisations, advocates and people with experience of living with epilepsy or caring can all submit an abstract.

Main themes: 
1. Medication, treatment and facilities
2. Advocacy, social stigma, myths & marginalisation
3. Rural services
4. Research and publishing
5. Empowerment and education of young people with epilepsy
6. Training and education
7. Policy and advocacy
8.     Collaboration and funding
9.    Psychological issues
10.  Experiences
11.  Tele-health, tele-medicine or tele-services

12. Contributing to Africa even with epilepsy

AFTER THE CONFERENCE CERTIFICATES WILL BE ISSUED TO PRESENTERS AND PARTICIPANTS TO CLAIM CPD POINTS

The timeline is as follows:

Setting of Organising CommitteeDecember 2023
Theme selection Theme: Empowering Caregivers: A Journey of Giving, Receiving and Valuing Care
Call for presenters and storiesMarch 2024
Click this link to submit your topic, abstract or summary
Final programMay 2024
Conference27 September 2024

Epilepsy Alliance African Conference (EAAC3) 2022

The EAAC3 was held under the theme More Voices More Awareness. Findings from the conference discussion are in the PowerPoint document above.

Epilepsy Alliance African Conference (EAAC2) 2020

Epilepsy Alliance African Conference (EAAC1) 2019